![]() ![]() ![]() It was only at the app in 2016 when she said “you have a chronic condition which you are on no treatment for, that’s like having asthma and not being on inhalers. I was diagnosed with endometriosis in 2013 and told I would be referred to a specialist. Can you tell us a little bit about your initiatives and how you are trying to raise awareness? You have been an advocate of the disease for a long time, you have your blog “Endo with Aimee”. We don’t have a multidisciplinary setting and a first consultation with a gynecologist can take up to 3 years or more for an appointment.ģ. Many medical professionals have no idea of the implications of endo on someone’s life and often we are subjected to dismissal. We face excruciating shame and stigma when it comes to accessing adequate pain relief. I was suffering 10 years before my ‘coincidental’ diagnosis, I never had a Gynae referral. We don’t have any guidelines implemented at GP level to indicate the possibility of endometriosis and to encourage gynae referral. People in Ireland who suffer from Endometriosis are extremely frustrated and their lives are completely destroyed by how our condition is diagnosed and managed. How is endometriosis regarded in Ireland, by the medical system, by the people who suffer from it? I sought answers from multiple doctors, I was hospitalized countless times but was always told my scans are clear and they can’t see anything wrong.Ģ. The only thing that ever truly helped relieve symptoms effectively is good quality medicinal cannabis flower & oil. Supplements, probiotics, patches, creams/balms, pharmaceuticals. I don’t think I could actually count the amount of alternative therapies I tried. Aimee, off the top of your head, how many alternative therapies did you try, where did you try to find the answers for your pain? Aimee, we salute you and we thank you for putting your faith in us.ġ. Through her Facebook page Endo with Aimee she is sharing her story and trying to reach as many people as she can to inform and educate them. She is one of the vocal and passionate advocates of endometriosis. But what about people outside the endometriosis community? What about the people who are just now finding out that they have something called endometriosis? They are just starting on the bumpy road that lies ahead, not knowing the many challenges they will face.įor them, people like Aimee exist. The difficulties lie essentially in the medical systems and in the political decisions taken by each state. By now almost everyone in the endometriosis community is aware of the many aspects and problems the disease causes. Awareness doesn’t just mean showing numbers and statistics. ![]()
0 Comments
Leave a Reply. |
AuthorWrite something about yourself. No need to be fancy, just an overview. ArchivesCategories |